Tucker’s Story: Defying the Odds with NKH
- 9 hours ago
- 1 min read
At just 5 days old, Tucker was rushed to the hospital because he had all but quit breathing on us.
Once he got to the ER, he was immediately intubated. That night he was life-flighted down to the children’s hospital in Baton Rouge, where we would spend just over the next month.
After about 2 weeks, we found out Tucker had NKH.
Shortly after treatment started, he was able to have the vent removed and started breathing on his own.
Tucker is now 18 months old and thriving. Our days are filled with medicine and therapy appointments. He has been in OT and PT since he was about 4 months old, and after he turned 1, we added speech.
When you get the NKH diagnosis, you always hear about the things your baby may not be able to do. I am grateful to say Tucker's story is defying the odds with NKH. He can eat and feed himself. He says “mana” and “dada” very intentionally. He’s crawling, pulling up, and has just recently started taking steps. He is just slightly behind, and we couldn’t be more proud of him.
He is such a sweet boy with a spicy side. He will let you know when he doesn’t like something. He loves to torment his Sissy, and he has the best personality, and for that I’m so thankful.
We will always support and advocate for Tucker and all the other NKH kiddos!
—Samantha, Mom, Caregiver, Advocate
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