When you have a child with Nonketotic hyperglycinemia, isolation becomes part of daily life. NKH is rare enough that most people I encounter have never heard of it, let alone understand what it means to live it every day. Friends and family try to relate, but the truth is they cannot fully grasp the weight of this diagnosis and, honestly, I am grateful they do not have to. That is why the NKH Crusaders Conference matters so deeply. There is something profoundly different abou

We are honored to announce the Audrey Tribe Memorial Scholarship — awarding $1,000 to an NKH family attending the 2026 NKH Crusaders Conference for the first time. Read Jeanne’s heartfelt letter about Audrey’s legacy and the inspiration behind this gift.

The difficult and often misdirected path to diagnosis The daily realities of managing severe symptoms like intractable seizures, low muscle tone, developmental delays, and feeding challenges The emotional and physical toll NKH takes on the entire family The urgent need for safer, more effective treatments and the willingness of our community to participate in clinical trials