When you have a child with Nonketotic hyperglycinemia, isolation becomes part of daily life. NKH is rare enough that most people I encounter have never heard of it, let alone understand what it means to live it every day. Friends and family try to relate, but the truth is they cannot fully grasp the weight of this diagnosis and, honestly, I am grateful they do not have to. That is why the NKH Crusaders Conference matters so deeply. There is something profoundly different abou
