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Join the Program and Rediscover Your Confidence
Join our community of devoted rare disease caregivers. Connect with others facing similar challenges to share resources and encouragement. Alone we are rare,
together we are strong.
Support Group Meeting Details:
• First Tuesday of each month at 12:00 PM EST
• Third Thursday of each month at 8:00 PM EST.
• Confidential, safe, and moderated.
Rare Connections Support Group
Ellie Kate’s Butterfly Wishes, an NKH Crusaders initiative, provides hope and practical support to children and families facing Nonketotic Hyperglycinemia. Honoring the life and memory of Ellie Kate, we grant wishes for vital resources and everyday essentials that significantly improve the impacted child’s quality of life.
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