NKH Crusaders Conference
April 15-16, 2026 - Boston, MA
Fundraiser Banquet Friday the 17th
The NKH Crusaders 11th Annual International Family Conference brings together families, caregivers, clinicians, researchers, and advocates for four days of education, connection, and hope.
Conference will take place April 15 and 16 and will feature expert-led sessions focused on Nonketotic Hyperglycinemia, rare disease, and caregiving. We are honored to welcome Dr. Johan Van Hove from the University of Colorado, Nick Greene from University College London, and additional speakers who will share knowledge, experience, and support.
The conference will conclude with our annual Fundraiser Banquet on April 17 and an optional farewell breakfast on April 18.
Household Ticket Pricing
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$75 per person
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4 tickets for $250 per household
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Each additional ticket after 4 is $25
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Discount applies to household registrations only
Conference admission fee covers venue and food expenses for both conference days.
This conference is designed to educate, empower, and connect NKH families while advancing understanding and care for our community.
A Year of New Beginnings
Join NKH families, friends, and community supporters for a meaningful evening as we conclude the 2026 NKH Crusaders International Family Conference.
The 2026 NKH Crusaders Benefit Dinner: A Year of New Beginnings is a community-facing fundraising event that brings together families impacted by NKH alongside advocates, donors, and local businesses who believe in advancing research and strengthening caregiver support.
The evening will include dinner, connection, and opportunities to support NKH Crusaders through raffles, auctions, and sponsorships. Funds raised directly support NKH research, caregiver resources, and programs that bring hope and stability to families living with Nonketotic Hyperglycinemia.
NKH families are encouraged to attend and invite friends, extended family, and supporters to join this special night of purpose and impact.
Available Scholarship Opportunities to Attend
John Thomas NKH Conference Scholarship
Provided by John Thomas NKH Foundation
$2500 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference
Livie Kind of Love NKH Conference Scholarship
Honoring the life of Olivia Carter
$1500 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference
Carey Barrett Family NKH Conference Scholarship
Donated by the Barrett Family
$1000 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference
The Audrey Tribe Memorial Scholarship