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NKH Crusaders Conference

April 15-16, 2026 - Boston, MA

Fundraiser Banquet Friday the 17th

​The NKH Crusaders 11th Annual International Family Conference brings together families, caregivers, clinicians, researchers, and advocates for four days of education, connection, and hope.

Conference will take place April 15 and 16 and will feature expert-led sessions focused on Nonketotic Hyperglycinemia, rare disease, and caregiving. We are honored to welcome Dr. Johan Van Hove from the University of Colorado, Nick Greene from University College London, and additional speakers who will share knowledge, experience, and support.

The conference will conclude with our annual Fundraiser Banquet on April 17 and an optional farewell breakfast on April 18.​

Household Ticket Pricing

  • $75 per person

  • 4 tickets for $250 per household

  • Each additional ticket after 4 is $25

  • Discount applies to household registrations only
     

Conference admission fee covers venue and food expenses for both conference days.

 

This conference is designed to educate, empower, and connect NKH families while advancing understanding and care for our community.

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Plan Your Trip

Book Your Stay

Use the link below to book your room with a discounted rate, using code: G-CKNH

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Available Scholarship Opportunities to Attend

John Thomas NKH Conference Scholarship

Provided by John Thomas NKH Foundation

$2500 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference

Livie Kind of Love NKH Conference Scholarship

Honoring the life of Olivia Carter

$1500 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference

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Carey Barrett Family NKH Conference Scholarship

Donated by the Barrett Family

$1000 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference

The Audrey Tribe Memorial Scholarship

Donated by Jeanne Carras

$1000 will be awarded to a qualifying NKH family to cover travel and lodging expenses to attend the 2026 NKH Crusaders Conference

Learn more about Audrey Tribe Here

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