When I was pregnant with Braylynn, everything was perfect. No complications, no warning signs—just the joy and anticipation of welcoming our

Maggie Jack was born like any other baby—beautiful and full of promise. But within hours, something wasn’t right. She began having seizures

A Journey of Hope, Heartache, and Resilience Sixteen years ago, on April 2, 2008, our world changed forever. Brodyn entered this world...

Rare Disease Day is a time to shed light on the challenges faced by individuals and families battling rare conditions. Today, we share...

A Devastating Diagnosis Becoming a mother again should have been a moment of pure joy. But when my daughter, Nora Jane , was born on July...

February is Rare Disease Awareness Month, a time to shine a light on conditions like Nonketotic Hyperglycinemia (NKH)