Just days after she was born, Charlotte began showing signs that something wasn’t right. She was unusually sleepy, had a floppy tone, and wouldn’t eat. We went to the doctor multiple times, but it wasn’t until she was finally admitted to the hospital that things escalated—and fast. She ended up in the NICU, intubated and fighting for her life. That’s when we learned she was having seizures.

May is NKH Awareness Month—a time that means the world to our family. I'm Angie, Ronan's mom, and every year this month brings a mix of...

The Day Tucker Was Born Tucker was born August 9, 2024. He came out screaming like any other baby, and we were overjoyed. But as the days...