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Click the icon to download a list of medications NOT suitable for NKH Patients. These medications either contain glycine or can significantly raise glycine levels.

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Click the icon to view a list of NKH Research Publications and Medical Journals.

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Comprehensive medical review of NKH published by StatPearls

NKH Crusaders Rare Connections

ONLINE SUPPORT GROUP

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Dr. Johan VanHove, MD, PHD

Children's Hospital of Colorado

Clinical Biochemical Genetics

Clinical Genetics and Genomics - General

"

In the land of the unknown, we have to try.

- Dr. Johan VanHove, MD, PhD

Share Your NKH Journey

Sharing your NKH journey helps families feel less alone, raises awareness, and drives the research and support our community needs. When you share your story, you give hope, understanding, and strength to others walking this path.

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