Two Online
Meetings Monthly
Join our community of devoted rare disease caregivers. Connect with others facing similar challenges to share resources and encouragement. Alone we are rare, together we are strong. Fill out the form by clicking the button below to receive an email with the exclusive Zoom link for our monthly support group meetings.
Support Group Meeting Details:
• First Tuesday of each month at 12:00 PM EST
• Third Thursday of each month at 8:00 PM EST.
• Confidential, safe, and moderated.
Sign Up for Text Reminders
Click the Link Below to Sign up for SMS Text Reminders
We will text you one (1) Hour prior to the upcoming support group meeting.
These happen:
-
1st Tuesday of each month at 12:00 PM EST
-
3rd Thursday of each month at 8:00 PM EST
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