Join our community of devoted rare disease caregivers. Connect with others facing similar challenges to share resources and encouragement. Alone we are rare, together we are strong. Fill out the form by clicking the button below to receive an email with the exclusive Zoom link for our monthly support group meetings.

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Support Group Meeting Details:

 

•  First Tuesday of each month at 12:00 PM EST

•  Third Thursday of each month at 8:00 PM EST.

•  Confidential, safe, and moderated.