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The Rare Reality.
Real stories from families living with Non Ketotic Hyperglycinemia.
Upcoming Research Opportunity: The NKH SCOPE CM Project
Learn about the NKH SCOPE Project, an upcoming research study exploring how NKH and treatments affect the body. Sign up for updates.
10 hours ago2 min read
Understanding Sodium Benzoate Grades and Certifications
Our downloadable guide was created to explain the most common grades and certifications associated with sodium benzoate and what they indicate about testing, manufacturing standards, and product safety. For example, some certifications focus on pharmaceutical manufacturing practices, while others focus on safety for food consumption or cosmetic use.
Mar 64 min read
NKH Research Update: Newborn Screening Development 🧬
We want to share an important newborn screening research development happening in the United States.
Mar 21 min read
NKH Families Invited to Participate in International Rare Disease Survey
The NKH community has been invited to take part in an important international initiative focused on amplifying the voices of patients and caregivers living with rare brain signaling-related disorders — including NKH.
Mar 21 min read
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