The Rare Reality.

Real stories from families living with Non Ketotic Hyperglycinemia.

NKH Families Invited to Participate in International Rare Disease Survey

The NKH community has been invited to take part in an important international initiative focused on amplifying the voices of patients and caregivers living with rare brain signaling-related disorders — including NKH.

Mar 21 min read

stack of papers in folders, sitting on top of an iPad

NKH Research Publications

List of known NKH Research Publications

Apr 7, 20251 min read