Rare Disease Day is not about pity
It is about visibility. It is about equity. It is about demanding systems that serve all children — not just the statistically convenient ones.
How Much Are You Willing to Fight?
It’s easy to stand on the sidelines. It’s easy to watch others carry the weight. It’s easy to complain that nothing is changing while waiting for someone else to make it happen.
But change does not come from waiting. Change comes from movement.
