
Committed to assisting those affected by NKH
We offer patient advocacy through awareness initiatives and caregiver support.
We also fund the vital research to advance NKH treatments
Patient Advocacy
Advocating for NKH Patients by spreading awareness
Caregiver Support
Rare disease support group for caregivers
Funding Research
Raising funds to further NKH Research in the US

NKH Patient and Caregiver Resources

100
Patients and caregivers supported
12
Studies Funded by the NKH Community
1,000,000.00
Raised by the NKH community
6
Years of Experience

Bee Involved.
You can make ALL the difference
NKH Crusaders relies on volunteers to help drive research forward, support families, and expand access to critical resources for those impacted by NKH. By giving just a few hours each month, you play a direct role in advancing our mission and strengthening a community that depends on connection, advocacy, and progress. Volunteer roles are fully remote, flexible, and designed to meet you where you are, with no pressure, just purpose.











