bed51a_d03f489a98f44b9f850651ee94fd2099_mv2.webp

PATIENT
REGISTRY

NKH Crusaders

HOW DO I PARTICIPATE?

Click the link button below to complete the patient registry questionnaire on the CoRDS website.

- OR - 
You can simply call CoRDS at

1-877-658-9192
and they will enter data on your behalf.

THE VALUE OF A CENTRALIZED AND ROBUST PATIENT REGISTRY CANNOT BE OVERSTATED

Early data from NKH gene therapy in mice shows that treatment may be effective in a wide range of ages.

* Complete your enrollment and survey by December 15, 2022 to be entered into a drawing to win one of ten $50 Amazon gift cards. Drawing to be held on December 16, 2022.

Your privacy is of top importance! This registry is de-identified, which means that only anonymous data will be shared with approved researchers.