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Share Your Journey
with NKH

Sharing your story can be deeply impactful for newly diagnosed families, researchers, and pharmaceutical companies.  It requires an immense amount of bravery to advocate for your child; we thank you for your boldness. 

Are you signed up for the Rare Connections Support Group?
Yes
No
Are you interested in volunteer opportunities within the NKH Crusaders organization?
Yes
No
Have you completed the NKH Crusaders Patient Registery?
Yes
No
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