Share Your Journey
with NKH

Sharing your story can be deeply impactful for newly diagnosed families, researchers, and pharmaceutical companies. It requires an immense amount of bravery to advocate for your child; we thank you for your boldness.

Your full name

Tell us about your life with NKH

Upload photos of your child

Are you signed up for the Rare Connections Support Group?

Yes

Are you interested in volunteer opportunities within the NKH Crusaders organization?

Yes

Have you completed the NKH Crusaders Patient Registery?

Yes

By submitting this form, I grant NKH Crusaders permission to use my story, photos, and videos for marketing materials, including but not limited to websites, social media, print, and digital publications, now and in the future. I understand that NKH Crusaders may edit submissions for length, clarity, grammar, and readability while maintaining the integrity of the content. I acknowledge that my submission is voluntary and that I waive any rights to compensation or further approval of the material

Share Your Journey with NKH

Share Your Journey
with NKH