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chanceenkhcrusader
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Join date: Nov 12, 2024
Posts (10)
May 13, 2025 ∙ 3 min
NKH Awareness Month: Celebrating Charlotte’s Strength and Unyielding Hope
Just days after she was born, Charlotte began showing signs that something wasn’t right. She was unusually sleepy, had a floppy tone, and wouldn’t eat. We went to the doctor multiple times, but it wasn’t until she was finally admitted to the hospital that things escalated—and fast. She ended up in the NICU, intubated and fighting for her life. That’s when we learned she was having seizures.
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May 6, 2025 ∙ 4 min
NKH Awareness Month: Honoring Ronan and Fueling Hope for a Cure
May is NKH Awareness Month—a time that means the world to our family. I'm Angie, Ronan's mom, and every year this month brings a mix of...
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May 1, 2025 ∙ 3 min
Tucker's NKH Journey: A Story of Strength, Hope, and Rare Disease Awareness
The Day Tucker Was Born Tucker was born August 9, 2024. He came out screaming like any other baby, and we were overjoyed. But as the days...
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