top of page
Document GIF

"NO-NO" MED LIST

Click the icon to download a list of medications NOT suitable for NKH Patients. These medications either contain glycine or can significantly raise glycine levels.

test tube GIF

NKH RESEARCH PUBLICATION

Click the icon to view Dr.VanHove's publication on NKH, find medication dosing information and more.

gif of a bee

GENERAL NKH INFORMATION

Click the icon to read about NKH from the NORD website

Scale GIF

KETO DIET INFO

Click the icon to download a study on the the ketogenic diets for NKH and glycine reduction

NKH & Rare Disease Support Group

Enter your email below to join the Live Zoom Support Group for NKH & rare metabolic diseases.

We're happy to have you join our live Zoom support group. You will receive an email containing a zoom link and schedule for the meetings.

The group meets the SECOND TUESDAY of every month, the button below is a direct link to the zoom.

NKH Research Updates

"

In the land of the unknown, we have to try.

- Dr. Johan VanHove, MD, PhD

bottom of page