Below is the contact information for the two leading Doctors who specialize in NKH.


Johan Van Hove, MD, Phd

Department of Pediatrics

University of Colorado Denver

12800 E. 19th Avenue

Aurora CO80045

Phone: 303.724.3806

Fax: 303.724.3827 Email:





Dr. Ada Hamosh, MD, MPH

Institute of Genetic Medicine

Science Director,

OMIM Professor of Pediatrics & Genetic Medicine

Johns Hopkins University School of Medicine

600 N. Wolfe Street

Baltimore, MD21287-4922

Phone: 410.955.3071

Clinic: 410.614.3313

Fax: 410.614.9246