top of page

NKH & Rare Disease Support Group
Enter your email below to join the Live Zoom Support Group for NKH & rare metabolic diseases.
The group meets the SECOND TUESDAY of every month, the button below is a direct link to the zoom.
NKH Research Updates
"
In the land of the unknown, we have to try.
- Dr. Johan VanHove, MD, PhD
Other Important Links
bottom of page