The Rare Reality.

Real stories from families living with Non Ketotic Hyperglycinemia.

Understanding Sodium Benzoate Grades and Certifications

Our downloadable guide was created to explain the most common grades and certifications associated with sodium benzoate and what they indicate about testing, manufacturing standards, and product safety. For example, some certifications focus on pharmaceutical manufacturing practices, while others focus on safety for food consumption or cosmetic use.

Mar 64 min read

Dimly lit hospital hallway with a blue tint, lined with closed doors and overhead lights reflecting on the shiny floor. Exit sign visible.

Rare Disease Day 2026: What It Really Means for Families Living With NKH

What does Rare Disease Day mean to you? It has so much meaning to me. It hits personal. Some years on this day, I am filled with hope. Some years on this day, I am tired. Tired of fighting for what our children need, but then I think of all the rare disease warriors who fight to live and breathe, and I remember my why!!

Feb 282 min read

stack of papers in folders, sitting on top of an iPad

NKH Research Publications

List of known NKH Research Publications

Apr 7, 20251 min read