Who We Are
At NKH Crusaders, our mission is to drive research toward better treatments, advanced medical technologies, and ultimately a cure for Nonketotic Hyperglycinemia (NKH). We are dedicated to supporting the NKH community by providing educational resources, caregiver support, scholarships to patients, and essential items not covered by insurance, empowering patients and families to live with strength, dignity, and hope.
What is NKH?
Nonketotic Hyperglycinemia, also known as glycine encephalopathy, is an autosomal recessive metabolic disorder caused by mutations in the glycine cleavage system.
This prevents the body from properly breaking down the amino acid glycine, causing it to build up, especially in the brain, and leading to severe neurological symptoms such as seizures, breathing difficulties, profound developmental delays, and sometimes coma.
NKH is extremely rare, affecting about 1 in 76,000 newborns worldwide, though rates vary in certain populations.
